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'I'm Still Here: A Breakthrough Approach To

Understanding Someone Living with Alzheimer's'

Penguin/Avery Books, by John Zeisel, Ph.D.

   

"I'm Still Here is a startling, uncompromising, and deeply compassionate look at how we care for people living with Alzheimer's. It overflows with insight, practical advice, inspiration, and hope."

 - DAVID HYDE PIERCE, actor and Alzheimer's advocate

"I'm Still Here offers a revolutionary yet pragmatic map for the compassionate care of people with cognitive impairments like Alzheimer's disease. John Zeisel's brilliant, soft-spoken, and heartwarming manifesto is a must read for anyone whose life involves helping someone with these special needs, a guide to new ways to connect to the person, not the disease."

 - DANIEL GOLEMAN, author of Emotional Intelligence

 

Cure Alzheimer's Fund

 

The CAF Mission Statement:

"To fund research with the highest probability of slowing, stopping or reversing Alzheimer's disease."

Every dollar given to CAF is immediately used for research with the best chance of leading to new therapies and, one day soon, a cure. We have no endowment and all our overhead and expenses are paid for by the organization's founders. So, when you give to Cure Alzheimer's Fund, you know exactly where your money is going. So far, we've funded almost $12 million in research in 17 different institutions across the country and one internationally. We seek out the best and brightest scientists who are working on cutting-edge research, and we give them the resources they need to bring us closer to a cure.

 

Cognitive Dynamics

          

Cognitive Dynamics’ Mission: To improve the quality of life of patients with cognitive disorders (such as Alzheimer’s disease) and their caregivers through education, research, and support of innovative care models which promote human dignity, especially therapies employing the expressive arts.

Why Cognitive Dynamics?

Lester E. Potts, Jr., the late father of Cognitive DynamicsTM founder and President Dr. Daniel C. Potts and a rural Alabama saw miller, became an acclaimed watercolor artist after the diagnosis of Alzheimer’s disease. Amazingly, he had never previously shown artist talent. This burgeoning creative expression was enabled through art and music therapy and other innovative programs at Caring Days, a dementia daycare center in Tuscaloosa, Alabama. By participating in the expressive arts, Lester’s cognition, mood, and behavior improved, and his wife and primary caregiver was granted respite. Furthermore, these therapies helped to restore human dignity and improve quality of life.

Lester’s story is but one example of the effectiveness of expressive arts therapies, and has given hope to countless victims of dementia and their caregivers. It was the inspiration for the formation of Cognitive Dynamics.

 

Richard Taylor, Ph.D.

 

Richard Taylor, a retired Psychologist, was diagnosed with Alzheimer's-type dementia in 2001 at the age of 58. Now 65, he is a champion for individuals with early-stage and early-onset Alzheimer's disease, and author of the book Alzheimer's from the Inside Out (Health Professions Press, 2006). He serves on the board of the Houston and Southeast Texas chapter of the Alzheimer's Association and has started over 50 chat rooms worldwide for people with Alzheimer's disease and their loved ones. Richard is a passionate advocate for several issues concerning the involvement of people living with a diagnosis of one of the diseases of dementia.

 

Dementia Positive

picture of John & Kate

"Encouraging communication, consultation & creativity in work with   people who have dementia."


Founded by UK based psychologist Kate Allen and poet/author/teacher John Killick.

The core beliefs which inform our work are:

Dementia is not just another medical diagnosis. How we think about and behave towards people with dementia both have a profound effect on how the condition affects the person and how it develops.

Each individual has social, emotional and spiritual elements which are at least as important as the intellectual. Spending time with people who have dementia challenges us as persons to develop in new ways.

Communication is fundamental to supporting people with dementia. It is at the heart of making and maintaining relationships, and therefore personhood.Nonverbal channels of communication are often more important than language-based communication.

Providing opportunities for creative and artistic activity can play a crucial role in self-esteem, confidence, quality of life and communication. TO READ THE COMPLETE PHILOSOPHY CLICK HERE



TimeSlips Creative Storytelling Project

The TimeSlips creative storytelling method opens storytelling to everyone by replacing the pressure to remember with encouragement to imagine.

The TimeSlips Project aims to:

To achieve these goals, the TimeSlips Project:

 

The Gerontological Society of America


We are the oldest and largest interdisciplinary organization devoted to research, education, and practice in the field of aging. GSA’s principal mission — and that of our 5,400 members — is to advance the study of aging and disseminate information among scientists, decision makers, and the general public.

The Society, founded in 1945, is the driving force behind the advancement of gerontology both domestically and internationally. Our members come from over 40 countries.

We foster collaboration between biologists, health professionals, policymakers, and behavioral and social scientists. We believe the intersection of research from diverse areas is the best way to achieve the greatest impact and promote healthy aging.

To further fulfill our mission, GSA assembles over 3,500 professionals from around the world to an Annual Scientific Meeting. This monumental event now features over 400 sessions each year. Additionally, we publish the field’s preeminent peer-reviewed journals.

 

Turtle Key Arts

 

Turtle Key Arts' main objective is participation in the arts for all with an emphasis on disabled,       disadvantaged or socially excluded people.

Turtle Key Arts has played a committed and innovative role in advancing disability arts, and is widely recognised as a leader in this field. As such, the company supports disabled and integrated performance companies including Amici Dance Theatre Company (integrated) and Extant Theatre Company (blind and visually impaired).

Turtle Song is a Turtle Key Arts, English Touring Opera and Royal College of Music partnership project. It aims to bring music, movement and singing to people with Alzheimer’s and their carers. Over the course of the project the participants write the lyrics and compose the music for their own song cycle. The piece is then recorded on CD and DVD and shared with friends.

 

 


Engaging Alzheimer's

Alzheimer's consultancy for individuals, care partners and organizations.

Founded by Kerry Mills, MPA.

At Engaging Alzheimer's we’re working hard to build a dynamic resource for those experiencing Alzheimer’s as well as their care partners, family members, medical professionals and organizations involved in the treatment of this disease. Our goal is to educate individuals and communities to view and treat people with Alzheimer’s in a way that maintains or improves the person’s lifestyle for as long as possible by prolonging his or her independence.

Our methodology is two-pronged. We coach individual families, in-home, and train professional caregivers serving people in the Alzheimer’s community.

If you would like to learn more about our services, please don’t hesitate to contact us.

 

Ladder to the Moon

           

UK-based Ladder to the Moon is a social enterprise using coaching, training and creativity to support care providers toimprove the quality of their services. We work with providers to build and sustain positive emotional experiences for clients,staff and relatives. The company has been supported by the Department of Health in developing Relationship Theatre® to provide a holistic and cost effective solution to the challenges care providers face.

The approach develops staff in their place of work, in their teams and with their clients.

We drive up quality of life by modelling excellent person-centred relationships, assisted by coaching and training programmes.

Positive outcomes include:

Improved Quality of Care
Increased staff engagement
More effective Teamwork

Richer relationships between staff and clients

Increased Wellbeing for clients and staff

 

Dementia Adventure

 

Dementia Adventure is a community interest company which connects people living with dementia with nature and a sense of adventure.

We do this by providing Training, Research, Consultancy and Adventures.

We believe in thinking differently about dementia. Our focus is on the individual and not on the illness. We want to know what you can do, not what you can’t. We believe people can live well with dementia, remaining connected to nature and enjoying a sense of adventure. If you believe this too then please join us.

 

European Reminiscence Network

The European Reminiscence Network aims to promote best practice in reminiscence work and to share experience across national frontiers. Co-ordinated by Pam Schweitzer since its inception in 1993, the Network now has partners in 20 countries and many associates in USA, Canada, India, Latin America, Australia and the Far East.

The partners work together to develop international projects, focusing on particular areas of reminiscence work and drawing in new and existing partners as co-operators with relevant interests and skills. All these projects are documented and externally evaluated, and some have resulted in widely used publications.

 

 

Shands Arts in Medicine

From humble beginnings, Shands Arts in Medicine has grown into one of the largest comprehensive arts in healthcare program in existence. Starting with 2 volunteer visual artists working on the Bone Marrow Transplant Unit, Arts in Medicine now has 16 paid artists in all art disciplines working in five separate buildings throughout the Shands Healthcare System, covering the Gainesville and Jacksonville communities. Our programs are designed to transform the hospital experience for patients, visitors, caregivers and staff. We focus on the follow areas: the visual arts, the literary arts, the performing arts, mind/body renewal, and design & aesthetics.

 

The Journal of Dementia Care

The Journal of Dementia Care launched in 1993, is at the forefront of a modern approach to care for people with dementia. It is a multi-disciplinary, bi-monthly journal aimed at all professionals working with people with dementia. It recognises that professional carers working with people with dementia have their own special demands which deserve a specialist publication.

The JODC has the following aims:

 

 

Non-Pharmacological Therapies in Dementia

Non-pharmacological Therapies in Dementia is a peer-reviewed, quarterly publication for clinicians and researchers with an interest in non-pharmacological treatment proposed in dementia care and Mild Cognitive Impairment, including medical doctors (neurologists, geriatricians, physiatrists, psychiatrists), psychologists, neuropsychologists, occupational, speech, and physical therapists, nurses, social assistants, and experts in bioengineering and architecture who work in the dementia field, students in all of the helping professions, and clinical scientists working on neural plasticity.


Editor-in-Chief: Elisabetta Farina, MD, S. Maria Nascente Clinical Research Center, Don Gnocchi Foundation; Milan, Italy; Contact editor